Monday, 26 November 2018

Hi guys
Its now November 2018 and i am 36 years old.   I thought i would update you all
For the past 3 years ive had the pain and bad periods slowly coming back. Ive had 3 coils fitted and a few different contraceptive pills, none have really helped and i knew deep down the endo was slowly coming back. Unfortunately Mr Trehan has now retired and i was referred back to the NHS gynae. I had a lap and they said i did have some endo back and i was stuck together inside due to all the scar tissue from all my previous operations but that this wouldn't affect me having pain etc.
Each month the pain was coming back worse and i wss only having around 1 week pain free a month. I wasnt getting anywhere with the NHS so knew before i got into the state i was before i had to find a private surgeon. After googling and doing a bit of research i found Mr Gan who i was told is actually Mr Trehans replacement. I went to see him in June 2018 for a consultation and he got me in for another lap. I had this in August 2018. When i went to see him after we had a long discussion and decided the way forward was excison of endo (again please never have it lasered, it just returns more aggressively), hysterctomy leaving my ovaries and he did say i would need all the scar tissue that is stuck together unsticking as this can cause pain and other side effects.
I had this op on 15 November 2018 and i am recovering at home. I was in theatre around 4 hours and in the 3 months since i had my lap the endo had gone all over my c-section scars and even my urethra. This was all excised, i had my hysterectomy and he managed to successfully unstick all the scar tissue. My bowel was stuck to other organs and when i go see him again in 3 weeks time he will go into more detail and show me the pictures. After 15 years of suffering from this awful disease im hoping i can finally see the light at the end of the tunnel. Im sore and still cant do much but hopefully it will all be worth it xxx

1 comment:

  1. Thank you for sharing your experience, it is helpful to others going through similar experiences. Hope you are much better and wishing you and your family well for the long term.